Nem sírhat, nem izzadhat, havonta csak kétszer fürödhet a vízallergiás lány

A 21 éves Tessa Hansen-Smith 10 éves korában tudta meg, hogy allergiás a vízre, ez egy szempillantás alatt megváltoztatta az életét. A diagnózist orvosként az édesanyja állította fel, ugyanis feltűnt neki, hogy a kis Tessa teste fürdés után kiütéses lesz. Először a szappanra gyanakodtak, ezért azt gyakran cserélgették, de nem lett jobb a helyzet.

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Exciting update! I just had an article published about me in the @dailymail. If you’d like to go get a nice introduction to my condition click the link in my bio! #aquagenicurticaria #chronicillness #dailymail

Príspevok, ktorý zdieľa Tessa Hansen-Smith (@livingwaterless), 27 Nov 2019 o 11:43 PST

Mivel a vízallergia a serdülőkorban kezd igazán kiteljesedni, a lány állapota egyre csak romlott, és ekkor már biztossá vált, hogy a vízre allergiás. A lány most ott tart, hogy napi 9 antihisztamin tablettát szed, hogy enyhítse a tüneteit. Emellett rengeteg más dologra is figyelnie kell, nem szabad például megterhelnie magát fizikailag, mert a saját izzadtságára is allergiás, illetve a sírás is veszélyes a számára, mert a könnyei is allergiás reakciót váltanak ki nála.

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I get rashes on my body quite often, but especially where clothes rubs/rests on my skin. Even during a slow walk, the body will produce some amount of sweat. Most of the time it’s so minuscule people will never even notice it—but we have to wash our clothes because they’re getting dirty somehow! Even though when I walk slowly (the only form of exercise I can really handle) sweat is produced, but while it starts out as a very small amount like everyone else, my body quickly reacts to this and makes my temperature increase, which in turn makes me sweat more. It’s not a great cycle for this allergy. This is just one example of what my skin looks like, the waistband of my leggings I was wearing today rests on my stomach. There are no bumps because the medication I take helps reduce the allergic reaction, but the skin will still flare up and be extra sensitive. If I started to itch these spots (which I try really really hard not to) then rashes and hives can quickly pop up and persist for a lot longer than this sensitivity. I try to post pictures and videos that show physical, observable reactions, because since half of this allergy is all internal the worst parts of my allergy are invisible. People with invisible disabilities and conditions face a lot of discrimination and hate. I’ve had people, even people in the medical field, accuse me of lying about my condition if I can’t produce reactions visible to the naked eye. When I was in the ER a few weeks ago receiving IV infusions, the nurse didn’t believe me at first that I had to have steroid anti-histamines injected first or the saline would hurt me. But in between injections of medicine saline needs to be injected to flush the IV tube, and during this time she saw me grimace in pain and asked me to show her where the pain was. I pointed to part of my arm, starting in my wrist where the injection site was, and following an odd path up my arm. She looked shocked when I perfectly pointed out the route of a deep vein, and only then did she believe I was in actual pain. This condition is hard enough to deal with, but the accusatory attitudes that come from others makes it hard mentally. So be kind to everyone! ?

Príspevok, ktorý zdieľa Tessa Hansen-Smith (@livingwaterless), 21 Okt 2019 o 3:24 PDT

A lány csak tejet ihat, egy korty víz is megárthat neki. Rosszabb esetben migrén és láz is jár a vízzel való érintkezéssel, ezért havonta csak kétszer zuhanyozhat.

A vízallergia időnként mentálisan is megterhelő, mivel rengeteg gyógyszert szedek nap, mint nap, és tudom, hogy ennek sosem lesz vége

- mondta a Daily Mail-nek.

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I hate taking pills so much, I dread it every day—you can probably tell from all my facial reactions ? The past two weeks have been really hard. My health dropped significantly and it’s been difficult bringing it back up. Two ER visits helped temporarily, but my pain is back and almost as bad as it was before the first ER visit. I’ve been missing all of my work shifts, most of my school lectures, I even missed two quizzes. My body just can’t keep up with my life at the moment. Going up and down stairs makes me feel like I just hiked a mountain. Lifting a jug of milk to pour it feels like I just curled a 50 pound weight. I can handle all the pain, what’s been most frustrating is just my lack of energy... hopefully things turn around soon. #disability #disabilityawareness #aquagenicurticaria

Príspevok, ktorý zdieľa Tessa Hansen-Smith (@livingwaterless), 12 Sep 2019 o 11:46 PDT

A fiatal lány viszont nem hagyja, hogy a ritka allergiája megpecsételje az életét. Most egyetemre jár, igyekszik megállni a saját lábán, ráadásul egy Instagram-oldalt is indított "Víz nélkül élni" néven, ahol a posztjaival szeretné felhívni a figyelmet arra, hogyan lehet élni ezzel a ritka rendellenességgel.

(noizz)